Living with a chronic autoimmune illness like multiple sclerosis (MS) can be an immense challenge.
But for Stephanie Johnson, a nontraditional student studying information technology in the College of Business, it’s a battle she’s facing head on with unwavering courage and determination.
Discovering strength amidst adversity
Johnson’s journey with MS began in her childhood; however, the diagnosis did not come until adulthood. She has had to face many hurdles over the years, including being asked to leave the Marine Corps due to the triggering of MS during boot camp.
Yet, Johnson’s resilience shines through as she pursues her degree, along with being a mother of three.
“I always felt different during my childhood, but I didn’t get diagnosed until I was 21,” said Johnson, who is from Sullivan, Missouri.
This autoimmune disorder, which affects the central nervous system, can manifest in a variety of ways, making it difficult to pinpoint and diagnose.
For Johnson, the onset of MS meant grappling with the sudden paralysis of her left leg, memory loss, blindness, trouble with speech and being confined to a bed for an extended period. However, she refused to let MS define her or dictate the course of her life.
Pursuing higher education
In spring 2024, Johnson began her studies at MSU.
“MSU faculty and staff have been very understanding, helpful and accommodating,” Johnson said. “I’m able to talk to the faculty openly and not fear being judged.”
Johnson currently has an associate degree in paralegal studies. Although she still has a few years to go before graduating, she is considering some career options.
“I hope to work for the DOD (Department of Defense) or the NSA (National Security Agency). If I don’t do that, I may open my own security company,” she said.
Raising awareness
Despite advances in medical science, there is still much to learn about the underlying causes and mechanisms of MS.
Johnson emphasizes the need for continued research to fill the gaps in our understanding of this complex condition.
In light of Multiple Sclerosis Awareness Month in March and the upcoming World MS Day on May 30, Johnson wants people to be aware of the severity of the disease.
“I encourage them to take the time to look up what MS is and what it does to the body and maybe they’ll better understand what someone who lives with MS feels daily,” she said.
“Also, know that we’re strong even if we look weak in your eyes. We fight to be where we are.”
Ways to help the MS community
Visit the National MS Society website to find out how to support the MS community.
The MS Foundation also provides information about opportunities to volunteer your time, donate money, learn more about MS and spread the word about it.
Learn more about the department of information technology and cybersecurity at MSU